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And it is a sad state of affairs if, as he says, doctors lose interest in patients whose diseases are uninteresting.
After all, the alternative – for Burns and for thousands of other psychiatrists – is to accept that in fact their working lives have constituted something of a travesty: either locking up or drugging patients whose diseases are defined not by organic dysfunction but by socially unacceptable behaviours.
In addition, an effort is underway to establish what Dr. Howard called a "case tracking system" that will collect data from people whose diseases or deaths appear to be linked to Sept. 11 but are not part of the registry, such as the case of Detective James Zadroga, whose death early this year was attributed by a medical examiner in New Jersey to the work he did at ground zero.
11490 SNPs and 6513 genes, whose diseases are also nominated in the KEGG database, are extracted from the JSNP database.
That's the only way to get ES cells with the genetic signatures of patients whose diseases they want to study.
The program's aim, Gahl said, is twofold: to diagnose patients whose diseases have eluded medical knowledge and to conduct research.
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It enrolled 330 colorectal cancer patients whose disease was becoming worse despite conventional chemotherapy.
"With all the emotion I could muster, I proposed," said Mr. Brown, whose disease is in remission.
The baby whose disease remained a mystery was another of Dr. Petrikin's patients.
"He didn't want anything but to tell me to get well," said Johnson, whose disease is in remission.
But Ms. Smith continued to travel to the Bronx to care for her husband, whose disease was ravaging his body.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com