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GDPR also takes aim at the practice of burying information that users need to decide whether or not to consent to their personal data being processed in difficult to find and read dense legalese.
The CAB consensus was that individual research participants should be given the choice to decide whether or not to consent to secondary sample and data sharing.
However, we did not know how families and communities would perceive this procedure or how they would decide whether or not to consent to a post-mortem needle biopsy.
Researchers probed participants about the circumstances under which the procedure would be acceptable, if any, their concerns about the procedure, and how they would decide whether or not to consent to the procedure.
The proposed model focuses on the consumer perspective, identifying the moments in which consumers make decisions about PGT and the information they likely need in order to make informed decisions about whether or not to consent to (certain tiers of) a PGT.
The majority of parents in both trial arms either strongly agreed (139/275, 51.0% ) or agreed (115/275,41.8%) with statement 2 that they had had sufficient time to think about whether or not to consent for their child to take part in CATCH (see table 2).
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Active involvement of patients in decision making for their own medical care, such as deciding whether or not to accept a particular treatment (informed consent), or choosing among medical-care options (informed choice), is becoming a worldwide practice [ 1].
Estlund asks whether their non-consent isn't nullified in the light of the fact that it is immoral not to consent.
However, if the parents disagreed about whether or not to provide consent, the father's wishes would take precedent.
Sarah Blandy, a law professor at the University of Sheffield who has studied gated communities, says developers are often required to provide a quota of affordable housing, whether gated or not, to gain planning consent.
Dr Barry Morgan criticised the plans as assembly members were due to cast their vote on whether or not to adopt a system of presumed consent for donating organs after death.
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Since I tried Ludwig back in 2017, I have been constantly using it in both editing and translation. Ever since, I suggest it to my translators at ProSciEditing.
Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com