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eResearch Capability Programme Team, Department of Health Summaryy of Responses to the Consultation on the Additional Uses of Patient Data' (Department of Health, 27th November 2009), p.6. fHill et al. ([2013]).
rIn light of the difference in views on use of identifiable data without consent by public, patients, and researchers reported in the summary of responses to the consultation on the additional uses of patient data (ibid) this finding may reflect the particular composition of the focus groups and their relatively high levels of prior involvement with the NHS.
dResearch Capability Programme Team 'Summary of Responses to the Consultation on the Additional Uses of Patient Data' (Department of Health, 27th November 2009); Stone et al. ([2005]); Robling et al. ([2004]) For similar conclusions in New Zealand, see Whiddett et al. [2006]; for the USA, see Damschroder et al. [2007].
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It seems to us that much more transparency and explanation is needed about how the 'further use' of patient data is the driving force of all improvement in health care and prevention.
Jeremy Hunt, the health secretary, plans to unveil new laws that ban use of patient data for commercial purposes.
The institute used it to help insurance companies set their prices.There is some debate over whether this an acceptable use of patient data.
Big players like the Cerner Corporation, which maintains electronic health systems for 8,000 clients, including large hospitals and retail clinics, and smaller players like Practice Fusion, which offers its Web-based health record systems free to health care providers, say they make use of patient data collected from their clients.
The institutional review board (IRB) of our university approved the use of patient data for this study.
The new agency, which would also be charged with ethical oversight of clinical studies, could facilitate better use of patient data by researchers, the report says.
Three major goals requiring achievement have been identified: patient-centered recording and use of medical data for cooperative care, process-integrated decision support through current medical knowledge, comprehensive use of patient data for research and health care reporting.
The use of patient data has been approved by the local Ethics Committee of the University of Basel, Switzerland.
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