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Another potentially useful approach is the use of registry data.
This article focuses on the regulatory and ethical considerations that arise from the use of registry data for research, including linkage of clinical and administrative data sets.
This study examined current guidance on the use of registry records and RCT study protocols from key systematic review organizations, institutes, and collaborations.
After a brief outline of the history of the standards development, it describes the use of Registry interfaces in some popular clients as well as dedicated UIs for interrogating the Registry.
One limitation is the retrospective design and the use of registry data for analysis.
The use of registry data also reduced answering bias, because the response rate was lower than expected.
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But Medicare has not pushed the use of registries, and the industry has also not embraced it.
Medicare or the Food and Drug Administration should also require the use of registries that track when devices fail.
Despite the widespread use of registry-lookup authority-assigned chemical identifiers, these types of identifier have a number of substantial drawbacks.
To review the current status of lupus registries, highlight the importance and evolution of registries in clinical lupus research, discuss substantial advances in the understanding of lupus through the use of registries, and discuss the future role of registries in terms of opportunities and challenges.
The use of registry-based variables for both exposure and outcome was therefore especially important in this study.
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