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The usage of patient data for research poses risks concerning the patients' privacy and informational self-determination.
Usage of patient data and routinely archived formalin fixed left-over patient tissue samples for research purposes by the attending physician is approved by local laws and does not require written consent (HmbKHG, §12,1).
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This shows that concerns about the privacy and security of patient data are experienced as a barrier to EMR usage.
Also, the usage of patients' past information (data from previous encounters) varied according to the setting of healthcare and content.
We concluded that the usage of patients past information (data from previous hospital encounters), varied significantly according to the setting of healthcare and content [ 19].
Control of patients' data should be returned to the patient.
Table 1 shows the usage of patient samples in experiments.
Unfortunately, analysis by prior therapy was not possible given usage of trial-level rather than individual patient data.
Feedback was seldom on content or quality of reports and usage of data beyond individual patient care was low.
Usage of the 'Tubingen' bio-bank with corresponding patient data was approved by the Ethics Committee, University of Tübingen (approvals 657/2012BO2).
All patients also gave informed consent for usage of their data for future analyses.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com