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Some of these informal caregivers indicated that their care tasks had been taken over by formal caregivers since the baseline measurement, while others considered their caregiver role as their duty rather than deserving of a distinctive label.
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On average, caregivers expected to be able to persevere with their care task for two years or more (Table 2).
Carer networks effectively contracted to those key individuals who were central to supporting them in their caring task.
For example, in one US study, residents said they stayed at the hospital to complete their patient care tasks despite knowing they had exceeded the duty hour restrictions [ 24].
Moreover, according to healthcare professionals, these conflicts interfered with their focus on care tasks.
But on the other hand, GPs with a broader perception of their mental health care tasks do not have more patient contacts than GPs with a more limited role perception.
Finally, Pt indirectly measures the burden of caregiving by asking caregivers how long they expect to be able to continue performing their current informal care tasks if the care situation remains stable, with pre-defined answer categories ranging from less than two weeks to more than two years [ 51].
Li [ 16] found that formal care does not replace informal care and that family members continue their care giving tasks even if formal care is available.
A support intervention was found to improve family carers' quality of life, their perceived burden of patients' symptoms and their perceived burden of care tasks [ 26].
The number of patients with nodding syndrome who could participate and help their parents with home care tasks increased from 152/484 (31.4%) to 372/484 (76.9%) with the intervention.
They undertook all tasks alongside their mentor and completed a full range of care tasks on their own, except for administering medication, moving and handling, and personal care.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com