While registered couples are not guaranteed access to health coverage or to other legal protections, the registry will make it easier for willing employers to dispense such benefits.
If someone in need of marrow very closely matches your type, the registry will contact you to determine if you are still willing and medically fit to be a donor.
The registry will go into effect Oct. 1.
The registry will periodically call people who enroll, to track their health problems over the years.
But the real question isn't when the registry will arrive; it's whether it'll work.
Now it has given details—and says that the registry will be public.
The law has exceptions, so getting on the registry will not help stave off all solicitation calls.
The registry will utilize the secure resources of the Informatics Core of YCCI for data storage and retrieval.
The registry will solicit information on medical/diagnostic history, and clinical symptoms/progression from patients and/or their physicians using an online questionnaire.
The telemarketers have argued that the registry will be a huge blow to business because it will limit the phone numbers they are allowed to call.
The registry will enhance the ability of DRC investigators to implement and complete patient-based studies in a more timely fashion.
