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The questionnaire selected for this study needed to be fairly brief, understandable and easy to complete.
In order to capture the specific outcome variables of interest for this study and to limit the length of the questionnaire, selected items from these surveys were chosen to create a new 16-item, 5-point Likert scale questionnaire ranging from strongly agree (5) to strongly disagree (1).
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DRD and AW designed and planned the research, participated in design of the questionnaires, selected facilities for the study, analyzed the data, and drafted the manuscript.
When the 2000 cohort was surveyed one year following qualification, this statement was included in only 25% of the questionnaires (selected at random).
TA, LG, JN, HT, CO and PW commented on the design of the questionnaires, selected facilities to survey in their respective countries, helped train data collectors and carried out the survey and assisted in the analysis of the data from their countries.
The QOL questionnaire selected for this investigation, the PKU-QOLQ, was developed to evaluate QOL parameters specific to the experience of living with PKU.
Recall of diet was assessed by a modification of the Block questionnaire, selecting for foods higher in fat and fiber.
The two validated questionnaires selected that pertain to male and female urinary symptoms are gender specific variations of the ICIQ-MLUTS (male) and ICIQ-FLUTS (female).
The questionnaire uses selected questions from the SRQ-20 to measure symptoms of mental health problems.
The contents of the questionnaire were selected by the original authors from a larger list of symptoms.
A subset of questions from the questionnaire was selected based on their sensitivity for comparisons between the methodologies.
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