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We provided copies of the questionnaire, complete with stamped-return envelops, to each Society.
Caregivers considered the questionnaire complete and clear and preferred dichotomous over the 4-points scales.
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The questionnaire completed by the doctors consisted of 31 questions regarding causes of treatment failure.
The questionnaire completed at recruitment is available at http://www.saxinstitute.org.au/ourwork/45-up-study/questionnaires.
The questionnaire completed every 3 months by the physicians also captured clinical responses and belimumab safety.
Baseline characteristics, medical history, HAQ and AQoL were extracted from the questionnaire completed at ARAD entry.
However, this aim became redundant since all patients who attempted the questionnaire completed it satisfactorily.
For covariates with multiple assessments, we used information from the questionnaire completed closest to BBD biopsy.
The purpose of the questionnaire was explained by one of the co-authors and the questionnaire completed 'on the spot'.
Participants will have a choice of not completing the questionnaire, completing the questionnaire with basic age/sex demographics or completing the questionnaire with full contact details.
The questionnaires completed by these students were included in the study analysis.
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