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The legacy documents were pre-annotated with a customized pipeline and the results displayed using ODIN.
Dignity therapy often involves family carers to support patients weakened by illness and family carers are also the usual recipients of the legacy documents created.
* It is likely that it will not be possible to collect post bereavement outcomes from all the recipients of the legacy documents within the relatively short timeframe of this pilot study.
In the Montross et al. study, the average length of the legacy documents was 8 single-space pages, which, at a transcription cost of 13 cents per line of text, yielded an average transcription cost of $56 (range $27 to $144) per document.
In contrast, in their study of DT with older adults living in care homes, Hall and colleagues [ 36] reported an average of 4 hours for transcription of the legacy documents and a total time for DT of 15.04 hours (SD = 7.13), which included time for the DT interview, transcription, and returning and revising the legacy document.
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The first session will involve a consultation to evaluate the patient's motivation for therapy and to determine any specific goals they have for creating the legacy document.
The legacy document was finalised with the aid of the person with MND and, where relevant, his or her family carer.
In one study, based on participant preference, the investigator expanded the legacy document to include photographs, and delivered the legacy book at a later time after the intervention than the other studies [ 26].
Dignity therapy is feasible and generally acceptable to family carers of people with MND, who recognize benefits to their ill family member and also the potential benefits to themselves during bereavement as a result of having the legacy document.
In this study, for 30% of the participants, 4 6 visits were required to review and revise the legacy document, in part because in subsequent visits participants recalled additional information they felt should be included.
In this session a hard-copy version of the "legacy" document will be given to the patient and provided for dissemination to loved ones as a keepsake if desired.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com