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And it created quite a bit of angst among the Steering Committee in general" and that " the Indigenous issue is problematic because of the quality of the Indigenous data".
Because our primary aim was to explore the determinants of smoking initiation among Indigenous young people we focus our findings on the prominent themes that emerged from the Indigenous data and draw attention to where there are significant differences with non-Indigenous youth within these themes.
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This study addresses the absence of Indigenous data, identifies the incidence and socio-demographics of drowning mortality and morbidity and describes the characteristics for all age groups including aquatic locations.
To make matters more complicated, among the many negative legacies of colonialism for aboriginal people worldwide is what the geographer and demographer John Taylor calls the absence of "indigenous data sovereignty".
One government statistician stated "I didn't think that the data would support it" and that "the problem with Indigenous data is that it is beset by problems which really stem from changing rates of identification over time and it's very hard to understand those things and to allow for the issues which vary from place to place and from time to time and from topic to topic".
Data linkage can contribute to national efforts to improve the quality of Indigenous data.
Several informants from at least one government agency indicated that concerns with the availability and quality of Indigenous data led them to be less involved in, or supportive of, the IBoD study.
Issues identified in previous literature include the initial setup of the framework and of the Indigenous knowledge data, which are both labor and time intensive and to this end, additional tools have been created to streamline this process.
Minutes from the first meeting of the SC show one member suggested they were initially "…sceptical of its applicability due to the wide-ranging and well-known deficiencies in Indigenous data" [ 32].
Given some uncertainties within Indigenous data, DOHA were keen to improve the evidence base, and an IBoD study provided an opportunity to do so and expand on knowledge of Indigenous health.
These guidelines provide a framework in which data linkage occurs in this context, and outline options that can be used to derive more accurate Indigenous data at both individual unit record and aggregate levels.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com