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On the positive side, it permits the collection of data elements that are not available in secondary sources, such as administrative claims.
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As rare diseases are highly diverse in nature, there is no one set of data elements that can be recommended for data collection in all natural history rare disease studies; rather the disease characteristics should reflect the prominent features of the rare disease.
First, they have assumed that the DBMS is a passive repository storing a large collection of data elements, and that humans initiate queries and transactions on this repository.
But doing so requires the collection of data that classify individuals by race.
(NRA-backed laws forbid the collection of data that would answer the question definitively).
We included all data elements that were clinically significant and met the following criteria: (1) availability of common fields; (2) consistency in operationalization of terms; (3) consistency in data collection methods; and, (4) congruence in original purpose for data collection.
These data suggest that the collection of cytoplasmic polyadenylation elements that have been called PREs may represent a mixture of Musashi binding sites and at least one more uncharacterised cytoplasmic polyadenylation element.
Yet, the collection of data on pupils and the analysis of that data help us to make more sound decisions.
These characteristics mean that the collection of data is costly.
The project has demonstrated that is possible to develop abbreviated value data domains for the collection of the data elements diagnosis, intervention and presenting issue across community health and outpatient care settings.
A data structure is the form of organization imposed on the collection of those data elements.
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