The best visual acuity, visual field testing and color vision testing were available from the records in all these patients at different time points, i.e. before treatment and 1 month (±7 days), 3 months (±15 days), 6 months (±20 days) and 12 months (±30 days) after treatment.
Data from beta testing is available from the associated datasets.
Information on pedigree, mutational status and testing were available from the kConFab central registry.
Example data for the pipeline testing are available from the GigaScience GigaDB database [ 37].
Free state-of-the art prion disease diagnostic testing is available from the National Prion Disease Pathology Surveillance Center (http://www.cjdsurveillance.com), which was established to facilitate autopsy performance and testing (8 ).
All symptomatic contacts had >1 sample type (respiratory swab or serum) collected for laboratory testing; results of PCR and serologic testing were available from 6 (60%), PCR only from 3 (30%), and serologic testing only from 1 (10%).
Data on the prevalence of PAE, obtained via maternal self-reports and meconium testing, were available from only six countries: Canada [ 15, 42], Germany [ 43], Italy [ 44, 45], Spain [ 36, 44, 46], Uruguay [ 37- 39], and the United States [ 40, 41].
A blood-screening test was available from an American company, but the French health ministry had banned it -- preferring to wait, the families of the victims charged, for a competing French product to come on the market.
All data used in tests are available from public sources.
