To the best of our knowledge, the only systematic recording of data takes place in the USA in the context of individual projects, namely by the Fragile X Clinical & Research Consortium (FXCRC), with its FORWARD Registry and Database, and by our Fragile X World Surveys (twice per year, also supported by the U.S. Centers for Disease Control) [ 14, 33- 35].
Due to the retrospective character of the study, another limitation was the lack of systematic recording of clinical data.
Recently, to develop effective public health policies for cancer control, China has made efforts to improve its systematic recording of cancer data and to report the survival rates for different cancers, including gastric cancer, adjusted by age, sex, and locality [ 6].
The systematic recording of masses of data alone won't be enough to ensure the reproducibility and objectivity of social studies.
In other words, the systematic recording of masses of data alone won't be enough to ensure the reproducibility and objectivity of social studies, because these studies need to use often controversial social concepts to make their data significant.
Therefore, a systematic recording of such research data in food databases is required, allowing the user to find quickly and easily the requested information (e.g. depending on the food product or the production conditions and distribution).
Consideration might be given to the design of a bespoke information system that could both provide healthcare professionals with specific information to support decision making and provide a platform for systematic recording of clinical and associated data.
Before the beginning of the study, no surveillance data on the CLABSI rate or systematic recording of CVC-days was performed.
More systematic recording of decisions, where ministers have been warned of poor outcomes, would be welcome.
Recognizing the importance of keeping systematic records of the proliferating PPI data, various databases have been created for curating and archiving these data and making them available to the scientific community (16 26).
This study has contributed to highlighting the implications of data recording for clinical management leading to the development of a systematic recording and data collection framework.
