In the latest Japanese survey, 22 of 37 CCHS patients survived without further disability, 8 survived with disability, and 7 died [2].
Prof Gilbert said that although the overall number of children dying is falling, the picture was complicated by the increasing number of children now surviving with disabilities and serious diseases, and this meant that proactive care was vital.
For every patient that dies as a result of injuries, many more survive with permanent disability (Peden 2004).
The average life expectancy of people who survive with permanent disability was difficult to ascertain, and there will always be a problem in estimating life-years lost in people who die following adverse events.
This girl was given up for dead in the intensive care unit ("her appearance reminded him of a mummy, shriveled, brittle, haunting"), only to survive with significant disabilities.
Its morbidity and mortality rates are among the highest, leaving individuals who survive with lasting disabilities [ 1- 3].
However it is still difficult to predict which babies will die and which will survive with severe disabilities.
For every death, 3 patients survive and live with disability [ 3].
The outcome after 6 months was favorable (GOS 3, 4 and 5) in nine patients (20.9%), who were included in group 2. One of them survived with severe disability (GOS 3); eight survived with minimal disability (GOS 4 and 5).
Deaths after discharge did not significantly change the reported rates. 1 Overall the proportion of babies admitted for intensive care who survived with severe disability increased by 2.6%−2.3%to7.5 7.5%), but a higher proportion survived without disability (11%, 6% to 16%) overall (fig 4).
