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The completeness of self-reported ethnicity information is much higher than in many studies which have attempted to quantify the effect of ethnicity on breast cancer survival: completeness was generally around two thirds (NHS Cancer Screening Programmes, 2009; Jack et al, 2009; 2012) or three quarters (National Cancer Intelligence Network and Cancer Research UK, 2009).
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Surgical series have demonstrated the factors affecting survival include completeness of surgical resection and nodal status.
Secondary endpoints included disease-free survival (for completeness and comparison with other studies), overall survival, compliance, safety and tolerability of chemotherapy and patient-assessed quality of life.
There was some variation in completeness and survival time difference between cancer registries.
In total 115 of the 191 patients have at least one follow-up form with survival information so that completeness of forms is 60.2%.
There are important limitations of this analysis, and we do not propose that it gives a full and accurate estimation of completeness and survival time errors.
Thus, we cannot discount the idea that our results, particularly the Black-White differences in survival, may be affected by completeness in our treatment data, particularly if it is differential across racial/ethnic groups.
The validity of survival estimates may also depend on completeness of cancer registration (Monnet et al, 1998; Prior et al, 1998).
Proving cause and effect is always a challenge for broad health care interventions, and there are many facets to comparison of population-based survival assessments from registration criteria and completeness of data to confounding medical conditions and social deprivation factors.
Another study suggested that the magnitude of error in survival time due to incorrect case completeness was <1% for patients diagnosed with colorectal cancer in England (Møller et al, 2011).
Annual reports and spin-off publications from validated registries with ≥90% national completeness were investigated for device survival data. 2 12 Registries report information on implant survival and do not report functional or patient reported outcomes per device.
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