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Some details of the investigation, including the start of the interviews, were first reported earlier this week by Time magazine and on Thursday by The Associated Press.
Written informed consent was obtained from all patients prior to the start of the interviews.
These participants provided consent in person prior to the start of the interviews.
Consent was obtained and verified by thumbprint or handwritten signature before the start of the interviews.
Participants gave oral informed consent at the start of the interviews or focus groups.
At the start of the interviews written informed consent and demographic data were obtained.
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At the start of the interview the interviewer asked for informed consent.
At the start of the interview, the interviewer made sure that the participant understood the information sheet and then signed consent was taken.
At the start of the interview, shake hands with the interviewer.
However, building rapport prior to the start of the interview and feeling comfortable with the interviewer is not guaranteed.
Participants will be randomised to receive the short or long format of the scenarios in coded packages that the interviewer will open at the start of the interview.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com