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All patients underwent a standardised phone interview on days 30 and 90 by blinded members of the study team.
Secondary outcomes evaluated during a standardised phone interview by an independent data collector were patients' satisfaction with and knowledge of with their treatment as evaluated on a 0-10 numerical scale.
Following a standardised phone triage conducted with the parents by a clinical nurse consultant, the patient and their parents attend a one-day multidisciplinary assessment clinic for diagnostic evaluation, medical examination and treatment planning.
Three research assistants undertook standardised phone screening regarding major inclusion and exclusion criteria for study participation.
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Details regarding the illness and hospitalisations were obtained via a standardised questionnaire administered by phone, in-person interview or self-completed form.
Specific details of illnesses and hospitalisations are obtained as needed via a standardised questionnaire administered by phone or in-person interview, or self-completed form.
Second, the MACE service at the Mount Sinai Hospital that managed the patients hospitalised during our study is specifically designed to minimise hazards of hospitalisation and prevent re-admissions and includes integrated follow-up care, including standardised postdischarge follow-up phone calls.
The physiotherapists are asked to closely adhere to a standardised content checklist for each phone call (available on request to the corresponding author).
We understand that certain new technologies (such as functional 3G printing) are interesting developments for the industry, but the efficiency of mass-produced phones built with standardised components will be the greatest competitive hurdle for modular devices to overcome.
The primary author conducted and audio-recorded 30 60 minute semi-structured, face-to-face or phone interviews using a standardised interview guide.
Patients contacted in this manner will be asked to contact the research team if they are interested in participating and then the research team will give a standardised verbal explanation of the study by phone, complete the recruitment proforma, and then send out the phase 1 patient pack.
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CEO of Professional Science Editing for Scientists @ prosciediting.com