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* CKAN - an open source registry of open data, currently used to power data.gov.uk.
We compared the cumulative incidence of TKA following arthroscopy in each study arm, stratifying by type of data source (registry vs. clinical), and whether the study was limited to older patients (≥ 50) or those with more severe radiographic OA.
We calculated the annual incidence of TKA following arthroscopy in four separate groups defined by data source (registry vs. clinical cohort) and whether the sample was selected for disease progression (either age or OA severity).
The ICTRP publishes a hyperlink to the record in the source registry (i.e. the registry that provided the data) so users can view additional information, if required.
Descriptive information on study phase, study design, randomization status and inclusion criteria for gender and age of participants was extracted manually from the complete registered record in the source registry.
The ICTRP publishes a hyperlink to the record in the source registry (ie, the registry that provided the data) so users can view additional information, if required.
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All three source registries contain nationwide data with good quality and coverage.
These secondary outcomes were selected both based on the quality and accuracy of these outcomes in the source registries, and in order to cover a clinically representative range of adverse short-term and long-term events after transfusion (mortality, cardiovascular, oncology, mortality, infections, renal).
We therefore extended an open-source registry platform, the Rare Disease Registry Framework (RDRF) to establish an Independent Rare Disease Registry (IRDR).
Data were linked from the following data sources: Norwegian Patient Registry (source 1), Statistics Norway (source 2) and all 25 hospital trusts (source 3).
Our study is the first to identify failure to transcribe varicella disease history as a considerable source of registry error (accounting for 25% of registry errors).
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