A vitiligo priority setting partnership was established including patients, healthcare professionals and researchers with an interest in vitiligo.
For example, the 'James Lind Alliance' (JLA) priority setting partnerships – formal partnerships of patients, carers and healthcare professionals – generate, define, refine and prioritize unanswered research questions [ 15, 16].
The James Lind Alliance (JLA) is a non-profit making initiative that aims to identify research priorities in different disease areas by facilitating 'Priority Setting Partnerships' (PSPs).
Other forms of guidance are available, for example those that were developed for specific health research priority setting situations, such as for Health Technology Assessments [ 39], applied health services research [ 40], guideline development [ 41], and patient/caregiver priority setting partnerships [ 42].
We could set up partnership arrangements between successful federations and smaller ones - British Cycling is doing that.
The steering group had a broad spectrum of representatives and they identified the scope of the priority setting partnership.
British Academy of Childhood Disability (BACD -James Lind Alliance research priority setting partnership BACD -Jamesgether patients, carers and cLindciAlliancequal stakeholderesearch
The survey contained clear information on the aims of the priority setting partnership, how the process works and how data will be used.
The topic is a research priority as identified by the national James Lind Alliance Sight Loss and Vision Priority Setting Partnership (see http://www.fightforsight.org.uk/sightlosspsp).uk/sightlosspsp
As a result of this priority setting partnership, we have established top 10 lists of research questions for a range of eye conditions.
