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With so many questions about the privacy and security of genetic data, researchers wonder what research subjects should be told.
Individuals must be in control of their data at all times, and this will require fine-grained technologies for managing consent, and innovative platforms that ensure the security of genetic data wherever it sits.
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4) How is it possible for REBs to protect the confidentiality and security of genetic information arising from these biobanks?
A21 Limiting Use of Genetic Data President Clinton issued an order barring federal agencies from using genetic data in any decision to hire, promote or dismiss workers.
Another sector that has suffered is bioinformatics, which uses computers to analyze masses of genetic data.
This is why plans to build giant databases of genetic data are fundamental to the future of this work.
And, of course, Navigenics is equally relentless about the privacy and security of the genetic data they collect.
What will developers build on top of our genetic data?
U.K. Biobank had done data releases before, including an earlier subset of the genetic data set with just over 100,000 people.
But the two companies do their own interpretation of the raw genetic data.
When all was said done, U.K. Biobank had assembled one of the largest single genetic data sets ever.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com