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A sample consent form and patient information sheet was provided to participating sites before study recruitment.
1. Genetic Sample Consent - The Genetic Sample Consent form will permit proteomic and genetic testing (plasma and DNA) from stored peripheral blood and other available biological samples such as tissue, to examine the same research questions.
Two sample Consent Forms were chosen to be reviewed by the ten individuals chosen to assess their comprehensibility.
Potential participants are mailed an invitation letter, a study brochure, a sample consent form, and a response form.
There was further reduction in participation rates when blood sample consent was compared with blood pressure measurements, which occurred in the same survey nurse visit.
Prinstein and Helms [ 10] provide sample consent and assent language that would be useful in face-to-face contexts that do not involve anonymity.
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Of the target sample, consents and analyzable data were obtained from 1,856 families (85.4 %).
Seventy-eight dental patients who could give a sputum sample consented to participate in the study.
At age 11 years, all 2064 original participants were invited to participate and 1019 (49.4% of the original sample) consented; 911 (44.1%) provided commuting data.
At age 14 years, the 1964 baseline participants with valid home addresses at 11 years were invited; 480 (23.3% of the original sample) consented with 475 (23.0%) providing commuting data.
Of the 2064 baseline participants invited to the 1-year follow-up, 1019 (49.4% of original sample) consented and of these, 954 (46.2%) provided Actigraph data.
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