"If we have somewhere we can go and actually look and research this information, we can better understand who we are," she added.
Where else can consumers research this information on the Internet?
As biobanks are part of the health research infrastructure and all data will be used in health research, this information can be regarded as 'relating' to health.
You may be able to use your insurance company's online system to research this information.
For a work of fiction or a published work of journalism or research, this information is usually available in the publication itself, such as on the copyright page for a novel.
Write a legal fact sheet for residents of the country that you are researching, providing this information.
One could argue that this principle implies that investigators have an ethical obligation to inform subjects about risks not directly related to research, because this information would help to support the subjects' autonomous decision making.
First, one could argue that investigators do not have an obligation to inform subjects about risks not directly related to their research if this information is not relevant to deciding whether to participate in a study.
Research shows this information overload comes at a price.
This is all the more pertinent given article 27 of the Council of Europe's Additional Protocol on Biomedical Research, which reads: If research gives rise to information of relevance to the current or future health or quality of life of research participants, this information must be offered to them.
