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To address a deficiency in clinical trial and research enrollment in gynecologic cancer studies, we launched a paper based patient research registry.
The foundation, which has established a research registry to compile data and biosamples on PN patients, sets the average age of those with the disease at 63, though onset often goes unnoticed.
To address the challenge of balancing privacy with the need to create cross-site research registry records on individual patients, while matching the data for a given patient as he or she moves between participating sites.
The purpose of this research registry is to better understand the characteristics of embolic stroke of undetermined source (ESUS) in young patients, to determine how often a second stroke occurs, and, if possible, to determine factors that contribute to a second stroke.
A research registry is a valuable tool for improving understanding, enhancing treatment, and extending resources.
A research registry is a database that is used to connect eligible research participants and their families with research opportunities.
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Our aim is to develop a Diabetes Research Registry (DRR) to facilitate recruitment by matching potential subjects interested in research with approved clinical studies using study entry criteria abstracted from their electronic health records (EHR).
Since the population-based medical registries, including the Danish Psychiatric Central Research Registry (DPCRR), 1 were established primarily for administrative purposes, understanding the validity of the diagnostic data included within them is critical to the interpretation of epidemiological research using these data.
Sign up for the Research Registry.
Judy E. Stern, a professor of pathology and obstetrics and gynecology at Dartmouth who oversees the Infertility Family Research Registry, a voluntary database that includes about 70 egg donors, said she believes that donor data is urgently needed.
This study was designed to determine the prevalence of asthma and atopy, in a large group of subjects with alpha-1 antitrypsin deficiency (AATD) participating in the Alpha-1 Foundation Research Registry.
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