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According to the common sense model, individuals create mental representations of symptoms [ 29– 31].
The interviews with women explored mental representations of symptoms, the development of their action plans, and factors influencing evaluation of their action plan.
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This will be reflected in informants' representations of symptom interpretation and seeking decisions.
Included patients had an NDI score of 10 to 62/100, which implies an inhomogeneous representation of symptoms.
Despite the very satisfactory response rate of 78%, a possible selection bias risk was an over-representation of symptoms among the respondents in respect to non-respondents.
However, when the same assessment was done in the responder and non-responder patient group, we observed that the representation of symptoms varied in responder and non responder groups.
Similarly, correlation with specific quantitative sensory tests (cold detection thresholds) may also relate to the inability of this test to represent the full DSP phenotype as well as a scale that includes more sensitive components such as a quantitative representation of symptoms.
Fig. 2 Schematic representation of symptom patterns across age groups (based on a weighting of derived from the frequency and severity of each symptom).
It is emphasised that results offer a graphical representation of symptom distributions by age group (we did not apply statistical significance tests as this was deemed inappropriate).
Patient responses indicated that a shorter questionnaire of 11 items, reflecting three main symptom clusters, provided a good representation of physical symptoms.
The findings of this study suggest that the initial 20-item symptom list provided a reasonable representation of the symptoms experienced by patients with advanced tumours (Table 2).
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com