Findings implicate the need for further investigation and development of culturally relevant caregiver intervention strategies and programs that incorporate spirituality as a core component.
The patient burden in the last days of life will be assessed externally by a family member or most relevant caregiver of the patient.
Issues of social isolation appeared to be most relevant for caregivers of younger infants and caregivers of children with more severe symptoms.
In contrast, concepts that were relevant to caregivers of infants and toddlers, but not to caregivers of older children or adolescents, included the need to feed the child frequently, feed the child small portions and spend a significant amount of time feeding the child.
Specific concepts that were noted in the focus group discussions as relevant to caregivers of older children and adolescents, but not to caregivers of infants or toddlers, included discipline issues, concern about the child's emotional well-being and concern about the child's academic development and self-esteem.
To ensure that this questionnaire adequately captured the key domains that were most relevant to caregivers of AD patients in assessing the burden of caregiving, 3 focus groups of 21 unpaid caregivers (21 females and 2 males) of AD patients were held in Los Angeles, Chicago, and New Orleans.
We previously identified 10 dimensions of quality of life as relevant to caregivers of persons with dementia, based on focus groups of Hispanic, Caucasian, African-American, and Chinese-American caregivers.
To identify aspects of health-related quality of life (HRQOL) that are relevant to caregivers of individuals with traumatic brain injury (TBI) and to propose an integrated conceptual framework based on this information.
In general, all domains were relevant to caregivers across socio-demographic groups.
The aforementioned employment issues appeared to be relevant to caregivers across language groups, age groups and symptom severity levels.
