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27 To account for the entire population of patients, we chose the registry success rates.
A unique feature that may contribute to long-term registry success could be the creation of an advocacy network in Turkey.
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Recent registries report technical success in over 98% and 30-day survival in over 87% of patients [ 21, 22, 23].
In addition, DIALOGUE is the first registry to determine treatment success based on the new individualized treatment targets recommended by the ADA and the EASD.
It is the first prospective registry to determine treatment success based on the new individualized treatment targets of the ADA and the EASD [ 33].
The linkage success varied between registries over time and, for the Italian registries, by type of birth.
The CORE study registry reported a high clinical success rate (85%) in 186 patients with neutropenia and documented Gram-positive infections [ 17].
Given the widespread use of early prenatal testing, restricting enrolment to women without prenatal testing would have dramatically reduced the available population, hindering the success of the registry.
The success of this registry will be measured by the proportion of people from it who are recruited to research projects, and its impact on overall accrual to studies.
We are grateful to the following steering committee members of ADCM who had contributed to the success of the registry: Professor Wan Mohamed Wan Bebekar, Dr Zanariah Hussein, Dr G.R. Letchumanan a/k Ramanathan, Dr Rozita Zakariah, Professor Fatimah Harun, Dr Syed Alwi Syed Abd.
YLLD presents another method to measure the impact of disease and may provide a potential benchmark to gauge clinical success by using registry data for tumors that are rapidly fatal.
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