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To describe the development of a dementia research registry, outlining the conceptual, practical and ethical challenges, and to report initial experiences of recruiting people with dementia to it from primary and secondary care.
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The newly diagnosed type 2 diabetic subjects in DD2 will be followed by yearly extraction of data from the DDDA and other registries outlined in Figure 1.
These patients, however, only participate indirectly in that their health care data are stored in the national registries outlined in Table S1 to the same extent as that of all other Nordic individuals seeking health care.
Guidelines for the structure of this type of clinical registry exist, outlining necessary characteristics such as the collection of variables for risk adjustment, indicators to assess quality of care, and outcome data.
Additionally, registries would benefit from outlining what is defined as an NGO and as well as an NGO project, and making efforts to capture NGO and NGO project reach.
The trial protocol has been registered prior to starting the trial on the Australian and New Zealand Clinical Trial Registry (ACTRN12615000138583), as outlined in table 1. Important protocol modifications will be communicated to the trial registry.
The specifics of the data from this registry have been outlined in detail before.
Part-way through the focus group sessions, just before question 4 in Table 1, each participant was provided a worksheet outlining the kinds of information that might be collected by a registry.
We believe that the NCT ID should be included in any final publication to allow the reader to evaluate the strength of the trial by comparing it to the original plans as outlined in the registry.
The C assessment methods used in this study were based on recommendations outlined in the Climate Action Registry (CAR) protocol for inventorying C in California forests [55, 56].
Will our children be indifferent about a having a mother and father?" Romney outlined his battle with the Registry of Vital Statistics to the Senate Judiciary Committee regarding changing the birth certificate forms.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com