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Monthly quality data generated through a diabetes registry is submitted by practices to the GOHCR.
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The study protocol for the DREAM registry was submitted to the ethics committee of each participating hospital.
Registry data is submitted voluntarily by each center using paper based forms and potential for under-reporting exists.
Checking usually consists of requiring "that at the time of submission that the registry number is submitted as part of the submission process".
This work is submitted.
Registry data are submitted without personal identifiers to the NCI, and these data are publicly available for research purpose.
Registry data are submitted electronically to the NCI on a biannual basis, and the NCI makes the data available for analysis.
Provincial and territorial Vital Statistics registries on all deaths were submitted to Statistics Canada annually.
Limitations of observational registries such as the MPS I Registry, in which anonymized data are submitted voluntarily, include incomplete, missing, or inaccurate data, as well as losses to follow-up and lack of standardization of patient assessments.
Registry data collection and analysis was submitted to ethical appreciation and approved by the National Commission of Data Protection, which is the national supervisory authority for personal data control.
Some of the stakeholders (e.g. regulators and registries) may require that data be submitted to a database that they control so that they can ensure the integrity of the data.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com