The accompanying information around specific collections in the Registry (documentation, description, synonyms, etc.,) is not checked routinely, as it is regarded as stable.
Registry documentation provided the American College of Rheumatology core set of disease activity measures, 13 which allowed to calculate the DAS including the 28-joint count for tender and swollen joints and erythrocyte sedimentation rate (DAS28ESR) 14 and the clinical disease activity index (cDAI).
Regarding the creation and maintenance of health registries, documentation of diagnostic improvements and treatment improvements as a result of analysis of registry data is probably the best justification for resource allocation.
Registry based documentation systems such as GTDS or other center focused cancer documentation systems rarely support guidelines or workflows and demand extra documentation activities outside the regular hospital CIS for cancer cases, which limits their usability [ 16, 31, 52, 53].
Between 1st July 1994 and 30th June of 1998, a consecutive cohort of 1,386 Chinese patients with type 2 diabetes were enrolled into the Hong Kong Diabetes Registry with documentation of risk factors, complications, drug use and clinical outcomes.
A diabetes diagnosis was assigned to those who met diabetes registry criteria: documentation of an inpatient or outpatient type 2 diabetes diagnosis, fasting plasma glucose >125 mg/dl, or diabetes medication dispensed.
268 patients with HER2-positive inoperable locally recurrent or metastatic breast cancer and non-progressive disease for at least 2 years under trastuzumab treatment were documented retrospectively or prospectively in the HER-OS registry, an online documentation tool, between December 2006 and September 2010 by 71 German oncology centers.
The main objective of the registry is the documentation, description and optimization of diagnostic and therapy of out-patient treated patients suffering from COPD in Germany.
In a prospective registry with detailed documentation of risk factors, complications, drug use and clinical outcomes, we explored the prognostic significance of CKD on incident severe hypoglycaemia and the interactive effects of prevalent CKD and severe hypoglycaemia on future risk of clinical outcomes.
Auxological and treatment data from 47,227 patients aged younger than 21 years with CFRD or T1DM in the German/Austrian Diabetes Prospective Documentation Initiative registry were analyzed by multivariable mixed regression modeling.
Based on interviews with health workers, trauma registry inputs and photo/video documentation, protocols and procedures taught during training workshops have been implemented effectively in the field.
