The authors acknowledge the efforts of the Surveillance, Epidemiology, and End-Results (SEER) Program tumor registries in the creation of the SEER database.
Its use allows valid linkage between population-based registries and the creation of a complete hospital discharge and prescription history for each individual.
The authors acknowledge the efforts of the Applied Research Program, National Cancer Institute; the Office of Research, Development, and Information, Centers for Medicare and Medicaid Services Information Management Servicess, Inc.; and the Surveillance, Epidemiology, and End Results (SEER) Program tumor registries in the creation of the SEER-Medicare database.
The authors acknowledge the efforts of the Applied Research Program, NCI; the Office of Research, Development and Information, CMS Information Management Servicess (IMS), Inc.; and the Surveillance, Epidemiology, and End Results (SEER) Program tumor registries in the creation of the SEER-Medicare database.
The authors acknowledge the efforts of the Applied Research Program, NCI; the Office of Research, Development and Information, CMS Information Management Servicess, Inc.; and the Surveillance, Epidemiology, and End Results (SEER) Program tumor registries in the creation of the SEER-Medicare database.
Given the lack of knowledge and the absence of a national registry, we echo the creation of a registry a recommendation that has been voiced by others [ 18].
[See additional file 2] Major questions asked were as follows: In terms of the creation of registries, we asked whether or not patient consent is required for inclusion in a registry, and the rationale.
Doctors are also discussing the creation of registries to track patients who have had CT angiograms.
Third, we urge that REBs adopt an active role in guiding the creation of registries and biobanks.
The authors conclude by recommending REB participation in the creation of registries and biobanks and the eventual drafting of comprehensive legislation.
