Additional strengths of the study include the large sample size, recruitment through cases identified from the national cancer registry, availability of detailed risk factor information, as well as multiple EBV serological markers.
Study strengths include the use of height/weight data for BMI, a representative sample from a well-established U.S. total joint registry, availability of electronically captured data for more than a decade and robustness of our findings across several sensitivity models (age-adjusted vs. age- and sex-adjusted vs. age, sex- and comorbidity-adjusted models).
This study had several strengths, including the use of national, population based registers of cancer and kidney transplantation, the long period of follow-up, and, unique to the ANZDATA Registry, the availability of comprehensive data on consecutive periods of transplantation and dialysis.
All patients diagnosed with medulloblastoma between September 2000 and March 2012 meeting the eligibility criteria of either the HIT2000 trial (ClinicalTrials.gov /NCT00303810) or being registered to the HIT2000 registry with availability of sufficient tumor material, complete staging information, and complete clinical information were enrolled in this study.
A major strength of the Philadelphia registry is the availability of longitudinal, continuous data collected in the same geographical area with the same methods of case ascertainment.
The multiregion French Language Peritoneal Dialysis Registry had good availability of outcomes as well as treatment data with most centers in France but also from other French speaking countries in Europe and North Africa.
The primary strengths of this study are a) the use of incidence rather than mortality as the outcome; b) the completeness and quality of the national cancer registries; c) the availability of detailed work histories; d) radon exposure data based on almost 250,000 radon measurements in the workplaces; and e) statistical methods that do not lose information by grouping age and exposures.
Among the characteristics assessed for the 48 registries, the focus was on 4 major areas: public availability of registry data such as annual reports or aggregate data, availability of individual patient-level data to outside researchers, RRT modality and submodality information, and details on reported patient outcomes with a focus on mortality.
Google offers its own Container Registry, which reached general availability two months ago, for storing and accessing private Docker images and developers can scale their cluster as needed.
Furthermore, the availability of registry data on family relations made the 'within-mother-between-pregnancy' analysis possible.
The main focus of the assessment was on the availability of registry information to the general public and accessibility of patient-level data to external researchers.
