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"[The] Ministry recognized the importance of the registries and provided additional funding and supported setting up of additional of registries" (MOH Official).
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NORD's programs reflect the new opportunities made possible by advances in technology, as we help patient groups establish global registries and provide online learning opportunities for physicians.
We present an overview of clinical studies registered at present at the four main international trial registries and provide a simulation on how adaptive RCTs can behave in this context, when mortality varies simultaneously in either the control or the experimental group.
This intervention was designed and carried out as a quality improvement research program that relied on standard methods for creating patient registries and providing patient outreach.
This is a web-based resource that aggregates de-identified patient information across many registries and provides a Globally Unique Identifier (GUID) to each patient data.
This is conducted to measure concordance of reported aggregate data with health center registries and provide support to health center and district managers to strengthen feedback and data improvement activities.
31, 36, 38 The fall in hemoglobin concentration has been repeatedly shown to parallel closely that of estimated glomerular filtration rate in large congestive heart failure registries, and provides strong indirect evidence that the kidney plays a major role in the pathogenesis of anemia in HF patients.
In some countries that are currently considering the national use of verbal autopsies, there is an expectation that verbal autopsies will produce the cause of death within a week in order to ensure integration with the civil registries and provide the evidence for legal death documentation (death certificates, insurance pay-outs, etc).
K-G.P. is a general secretary of the Swedish RRT registry and provided all data used in the analysis.
This paper reported on the International E-vita open registry and provided data from January 2005 to December 2010 [ 7], including 274 patients with complex aortic disease who were enrolled in the registry.
In each centre, a physician was in charge of the registry and provided a full list of all patients admitted to the unit.
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