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Data including reason of refusal, reason of proposal, subjective evaluation of clinicians and outcome at hospital discharge and three months later were collected in the standardized case-report form.
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Using routine data from ET we have previously analysed physician-reported refusal reasons to better understand why offered pancreases are refused in the allocation process [ 9].
Refusal reasons were mainly lack of time or non-permission of the husband.
We also paid attention on the degree of missing data; the refusal rates and the refusal reasons.
Overall, the significance of various refusal reasons was not judged in a consistent manner and often, refusal reasons seemed to lack plausibility in the absence of evidence supporting the refusal.
Refusal reasons included the following: disinterest (59%), time (17%), reluctance to complete a telephone survey (3%), the topic (3%).
Among refusal reasons, the need to attend the service more frequently than routine care was indicated by 18%% of participants.
For example, the investigators of the PINQ found that some of the refusal reasons are "not wanting to be reminded of their illness, feel too old", etc.
A multitude of refusal reasons has been reported which were grouped in four domains: donor-related criteria, recipient-related criteria, logistic criteria and technical criteria.
Of the 17 schools, after taking account of refusal reasons such as interfering with school activities, sport days, and examination period, 15 schools consented to participate in the study.
For other refusals, reasons included that they were uncertain they wanted to participate but were open to being approached at another time.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com