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The 24, 48 or 72-month Follow-Up Questionnaires request information on: personal health history, breast cancer progression (only at 24 month follow up only), recurrence, contra-laterality and new primary diagnosis, medications (prescription and over the counter), smoking habits, alcohol consumption, sun exposure, dietary intake, mobility and physical activity and anthropometric measurements.
Self-administered questionnaires request information on personality and mental status (DS14 and DS16; 15 16 GAD-2; 17 PHQ-9; 18 Mini-SPIN; 19 PHQ-15; 20 CDS-2 21), physical activity (Short Questionnaire to Assess Health-enhancing Physical Activity, SQUASH, 22), quality of life (Pulmonary Embolism Quality of Life, PEmb-QoL 23) and treatment satisfaction (Anti-Clot Treatment Scale; ACTS 24).
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Questionnaires requested information on age, gender, education, dental care, smoking habits, general diseases and medicament use.
Of 211 distributed questionnaires requested by 132 hospitals, 176 (83%) were returned to the study center.
Of 284 distributed questionnaires requested by 186 hospitals, 95% (271/284) were returned to the study center.
Several participants were aware the questionnaires requested the same information more than once.
For those in paid employment, the self-report questionnaires requested further details of typical work activities and periods of back pain-related work absence.
Since June 1990, participants have been asked at approximately 2-year intervals to complete self-administered questionnaires requesting information on various exposures and medical diagnoses.
Standard self-completed questionnaires requesting basic information on personal and demographic parameters were mailed to consenting individuals with ME/CFS, and to their main carers.
The baseline and follow-up questionnaires requested information regarding reproductive history, surgical history (including preventive oophorectomy and mastectomy) and all new diagnoses of cancers.
The baseline and all subsequent questionnaires requested information on status and duration of PMH use, menopausal status, type of menopause, history of benign breast disease (BBD) and current weight as well as, beginning in 1978, the type of PMH.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com