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Procedures for monitoring the quality and accuracy of data collection must be established and maintained not only for the collection and analysis of biologic or environmental specimens, but also for the assessment of questionnaire, developmental testing, and other health outcome data.
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The survivors and/or their parents were asked to complete a questionnaire detailing developmental problems and presence of a seizure disorder.
Currently, there are a handful of valid and reliable instruments that are typically used with Native children by researchers, caregivers, and parents (e.g., The Work Sampling System, Ages & Stages Questionnaires, Nipissing Developmental Screen, Gesell, Battelle Developmental Inventory).
Neurodevelopment is a wide area that encompasses many cognitive and behavioral outcomes and includes even more assessment instruments, ranging from parental questionnaires on developmental milestones to detailed neuropsychological assessments.
Parents periodically filled out a well-validated questionnaire that tracks developmental milestones in children from age 8 months to 3 years.
At age 2 3, 719 children had parent questionnaire and child developmental assessment data collected.
The Ages and Stages Questionnaire (ASQ), a developmental screening test, was directly administered to the child (Squires et al. 1999).
Each questionnaire contains 30 developmental items divided into 5 areas: communication, gross motor, fine motor, problem solving, and personal social.
Table 4 presents means, standard deviations and cut-off points by questionnaire for each developmental domain, comparing the Mohawk and U.S. populations.
Third, to minimize the confounding effect of child's age at questionnaire completion on developmental outcomes, we restricted analyses to children aged 36 to 40 months.
HealthTracker™ is an established platform for online collection and storage of medical data that allows multi-modal presentation of questionnaires (including animated scale presentations for young children) and assists in automatically allocating questionnaires based on developmental level rather than chronological age.
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