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Consequently, we analysed self-reported and proxy reported data together assuming this was the best estimate of participation.
Analyses are of parent proxy reported PROs only and were conducted using SAS® 9.4 software (SAS Institute, Inc., Cary, North Carolina).
Statistically significant differences were observed for the proxy reported KINDL Total and the subscales Physical, Psychological, Self-esteem and School.
BPD: bronchopulmonary dysplasia; CLD: chronic lung disease; ELGAN: extremely low gestational age newborn; PRPOS: proxy: reported pulmonary outcome scale.
Our first aim here is to quantify the level of agreement between children self-report and parent proxy reported quality of life.
Both over and underestimations of proxy reported pain of children are reported in the literature resulting in suboptimal care [ 8, 9].
Similar(53)
Parents of patients with mild intermittent asthma proxy-reported the highest overall patient HRQOL.
Parents of obese children proxy-reported significantly lower overall HRQOL, physical health, and social functioning in comparison to overweight children.
Patients in the psychiatric cluster self-reported the lowest psychosocial health, while parents proxy-reported the lowest overall psychosocial health for the cerebral palsy and psychiatric clusters.
The majority of studies reported on proxy-reported psychological functioning in children with CHD.
A full understanding of the impact of obesity on HRQL therefore requires that both the parent proxy-reported and adolescent- reported HRQL are considered [ 11- 17].
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