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By completeness of data, we refer to the proportion of registrations completed.
The proportion of registrations missing an NHS number was small (<2%) and did not change significantly with age.
The proportion of registrations lost to follow-up in European registries is believed to be <1% (Capocaccia et al, 1999), but is unknown in the United Kingdom.
Registrations after death (n = 8535) were also audited (n = 917) to estimate death certificate only (DCO) case accuracy and the proportion of registrations notified by death certificate (DC).
A greater proportion of registrations from the West Midlands had unspecified morphology, 26% compared with 5% in other regions, and also had the lowest incidence among specified tumour groups except medulloblastoma.
The proportion of registrations notified by the CCLG was very high (97% or more) for the typical cancers of infancy and early childhood normally diagnosed in specialist paediatric oncology centres (leukaemia, neuroblastoma, retinoblastoma, and renal and hepatic cancers), and rather lower in diagnostic groups that are relatively frequent in older children, teenagers and adults.
Similar(53)
Both sources notified slightly higher proportions of registrations for patients who died than for other patients.
Regarding the non-laboratory parameters, the proportions of registrations with different values were all beneath the 15%.
The proportions of registrations in the EMR and SRP that had different values regarding the laboratory parameters exceeded the 10% only for fasting glucose (i.e. 30%) (table 1, final 4 columns).
Figures 2A and B show that the registries had similar cumulative distributions after about 3 months (i.e., the proportions of registrations with a difference of >3 months were similar across the registries).
The proportions of registrations from natural mating sires are about 63% among Limousin calves in 2011 (Bob Weaber, K-State University, personal communication) and about 40% among Simmental calves (Wade Shafer, American Simmental Association, personal communication).
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