First, "coding" of samples and data – delinking of personal identifiers from sensitive health information to protect privacy – complicates future communication and feedback to participants.
To "enable you to send us your questions, concerns, and feedback about privacy," Facebook today launched "Ask Our Chief Privacy Officer".
The Quality Checklist consists of seven categories: (1) authorship, (2) content, (3) currency, (4) usefulness, (5) disclosure, (6) user support and feedback, and (7) privacy and confidentiality.
In early April, Hernández posted a link to a basic website with details of Openbook to a few online privacy and tech communities asking for feedback.
In this paper we present a new approach which supports both data privacy and the possibility to give feedback to patients about their individual research results.
This paper provides an overview of some of the key ethical issues around GWAS: consent, feedback of results, privacy, and the governance of research.
The use of GWAS in medical research and the increased ability to share data give a new twist to the perennial issues of consent, feedback of results, privacy, and the governance of research, as many commentators have discussed.
In addition, issues such as strategies of combining informed consent with rules for re-consent, withdrawal and feedback from research as well as ways the issue of genetic privacy raise special challenges in genetic research in China.
This paper focuses on four key areas of particular significance for the use of whole genome techniques in medical research: consent; feedback of incidental findings; privacy; and the governance of research.
The penultimate entry in Privacy is "Feedback & diagnostics".
