These findings are used for prenatal decision making, clinical management and genetic counseling.
to understand the prenatal genetic testing decision-making processes among pregnant Korean-American women.
However, although prenatal testing-related decision-making has been relatively well studied for Down's syndrome and other congenital disorders, decision-making about subsequent pregnancies among mothers of children with PDD has been virtually ignored as a subject of study.
As part of my research for a book on prenatal testing and reproductive decision-making, I have talked with women who terminated their pregnancies when they learned that the fetus had Down syndrome.
Knowing that society is not a place where individuals with disabilities are fully supported and integrated is why many women have terminated their pregnancies when they learn that their child has Down's syndrome, Alison Piepmeier, whose 4-year-old daughter, Maybelle, has Down's syndrome, is writing a book on prenatal testing and reproductive decision-making.
In keeping with the findings of qualitative studies that demonstrated the value women place on the interpersonal processes of prenatal care (including communication, decision-making and interpersonal style), recent attention has been focused on the conceptualization of these processes, their measurement, and their impact on women's satisfaction and perception of quality of care [ 7, 22].
PRC composition and decision-making around prenatal smoking/alcohol use items revealed a primary focus on the prenatal record as a tool for individual clinicians.
Research on informed decision-making in prenatal screening, primarily for Down syndrome, has shown that decisions about testing are often not informed.
Facilitating women's informed decision-making regarding prenatal screening tests requires much more from the GP than the provision of appropriate information under significant time constraints; moral dimensions also exert an influence.
