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A more pragmatic data collection needs to balance the delivery of highly accurate and complete data with minimizing the level of interference that data entry and verification induce with clinical practice.
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To the extent possible given financial and pragmatic constraints, qualitative data collection continues until saturation and redundancy are reached [ 54, 55].
However, the use of a patient diary represents a pragmatic solution to data collection in the community setting and such patient-related outcome measures are recommended in current guidelines for follow-up assessment of bowel habits in children [ 27].
We agreed on 24 FGDs given our wish to ensure sufficient geographic distribution (since that the program is active in an entire region) while allowing for pragmatic feasibility in data collection and analysis.
Due to the high time demands on both staff and carers we felt that a pragmatic approach to data collection with these populations was justified, although it is acknowledged that the inclusion of further sites would have helped with recruitment and strengthened our findings Nonetheless, the quality and richness of our data suggested some positives to the small group sizes.
It now becomes possible to do pragmatic trials with automated data collection through linked primary and secondary care data systems.
These possible limitations are outweighed by its strengths: being a pragmatic study with routine data collection in the public health sector and responsible for assistance of over 1.5% of the Brazilian population with AIDS [ 34].
The present final paper of the series discusses the operational and methodological challenges of data collection in pragmatic trials.
The structural characteristics of trials can be characterized as a function of the attributes such as pragmatic versus explanatory, entry criteria, data collection instrument, etc.
The study has a strong design incorporating random allocation, pragmatic design and blinding of data collection interviewers.
Third, interviews with natural groups provided a pragmatic solution in regard to data collection, since many individuals were already part of pre-existing groups and were more likely to participate by way of these.
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