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When the horizon disappears, the view with its social, cultural and personalised values, is replaced by the setting.
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[Medium-Risk Participants] Our study provides preliminary insights on an important but understudied issue in the use of CPMs to advance personalised healthcare: the value of personalised risk information from the patient perspective.
[Medium-Risk Participants] Most participants, however, expressed scepticism about the value of personalised risk information.
Healthcare practitioners should also explore whether patients apply any personalised norm when judging value normality and whether this norm is appropriate from a clinical perspective.
To explore the experiences of patients with prostate cancer with risk information and their perceptions of the value of personalised risk information in treatment decisions.
Semistructured interviews explored participants' experiences with using risk information, and their perceptions of the potential value of personalised risk information produced by clinical prediction models.
The study provides empirical evidence on the value of personalised risk information from the patient perspective, and identifies previously unexamined barriers to effective use of this information.
The primary interview domains consisted of participants' (1) past experiences with risk communication, and (2) perceptions of the value of personalised risk information produced by CPMs.
30 31 Our findings have important implications for potential users of CPMs because they identify patient perceptions of the value of personalised risk information as a barrier to the use of CPMs, and suggest potential modifiable reasons for these perceptions.
Overcoming these barriers will require providing patients with greater exposure to risk information, education about the nature and value of personalised risk information and training in deliberative decision-making strategies.
An outline of identified themes is provided in appendix B. The current analysis focused on participants' perceptions of the value of personalised risk information; analyses of other themes will be reported separately.
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