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Even with this adjustment, however, the new formula gives less weight to deprived areas than does the current pattern of funding.
Figure 3 illustrates a similar pattern of funding distribution relative to the different cancer types as seen in Figure 2 with the exception that liver cancer appears more equitably funded when using DALY values instead of YLL values.
This pattern of funding discourages upstream management of illness, does little to prevent exacerbation of illnesses and leads to a model of care based on high cost acute management.
This pattern of funding has been reported elsewhere (39, 40).
The pattern of funding from the BMGF provides some interesting implications.
For example, one study asked participants if they were satisfied with the pattern of funding for research.
There was a clear disparity between the United Kingdom's pattern of funding for autism research and the priorities articulated by the majority of participants.
Some autistic adults noted that the priorities as illustrated by the pattern of funding represented 'neurotypical priorities regarding us – not autistic people's priorities'.
The relative severities of each type of cancer are quite similar in the United Kingdom and United States and the pattern of funding levels relative to YLL burden is broadly similar in both countries, although there are cancers that appear differently prioritized in terms of this ratio (e.g. brain/central nervous system, kidney, leukaemia, oral, uterine, prostate, Hodgkin's lymphoma, testicular).
Next, there were two 'open questions' in which they were given opportunities to provide comments on perceived gaps in the pattern of funding and to identify 'the one thing about autism they would like to see researched in the coming decade'.
Patterns of government funded research undertaken by the CHEPSAA partner 4.5.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com