Cognitive interviews proved critical for engaging patients in the development process and highlighted the necessity of clear message development and use of design principles that make decision materials easy to read and easy to use.
There is growing recognition that involving patients in the development of new patient-reported outcome measures helps ensure that the outcomes that matter most to people living with health conditions are captured.
However, the involvement of patients in curriculum development, program design, or assessment is less developed or utilized.
However, we would not seek to discourage the development of new instruments, especially those which exploit modern developmental approaches, and involve patients in the development.
Similarly, in patients in whom development of hyperchloremic metabolic acidosis could carry a significant morbidity (e.g., patients with compromised renal function or already existing acidosis), NS maybe contraindicated as a resuscitation fluid [56],[56].
The SAQLI appears unfeasible for use in clinical practice because it is interviewer-administered, but it does cover a very broad range of topics identified by patients in its development phase.
The objective of this work is to provide general guidelines to help the different players to incorporate patients in the development of CPGs and to adapt the patient CPG version (CPG-P).
We studied 188 patients in the development set and 132 in the validation set.
In this domain one dimension appeared: involving patients in the development of services.
However, we did not involve patients in the development process of the eHealth programme.
