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Defining business rules for a patient-level data collection is different from defining business rules for aggregate data collection.
Patient-level data collection included longitudinal measures of pain, quality of life, and integrative medicine treatment utilization.
NSW Health is undertaking the community health and outpatient care information project (CHOCIP), which will develop a patient-level data collection across selected services in NSW.
It was also found that the rules developed to make the NAPOOS more comparable across services were not suitable for a patient-level data collection.
On the patient-level, data collection extendedly focuses on psychosocial questionnaire (PSQ -, infectious disease-, cander, and causes-of-death data; on the case-level on bio-sampling, organ function, immunologic events and causes of graft failure.
Our study is based on administrative records from several sources, each of which may contain errors, and is unlikely to capture as many cardiovascular endpoints than studies with study-specific, patient-level data collection [ 20, 21].
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To minimize this possibility we restrained from more "invasive" study procedures such as observation of consultations and limit patient level data collection only to patient's exit interviews.
NSW Health is undertaking the community health and outpatient care information project (CHOCIP), which will develop a patient level data collection across all community health and outpatient care services in NSW.
Starting October 2011, we collected patient-level data prospectively by a dedicated data collector using the 2008 SSC data collection tool [39].
Specifically, when the outcome of interest is binary, the two-phase design provides a framework within which researchers can resolve ecological bias through the collection of patient-level data on a sub-sample of individuals while making use of the routinely collected aggregated data to obtain potentially substantial efficiency gains.
The widespread collection of patient-level data represents a critical step towards the realization of personalised medicine [ 1, 2].
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