The recent Apple Watch event also revealed that Williams, a fitness buff like Tim Cook, had also been working on ResearchKit, an open-source health initiative that allows hospitals and researchers to use iPhones to perform health-related patient research.
Quotes of professional researchers are indicated by 'R' and those of patient research partners (in short: 'partners') by 'P'.
Here, we describe and discuss different experiences of integrating patients as full patient research partners (PRPs) in outcomes research from multiple perspectives (e.g., researcher, patient, and funder), drawing from three real-world examples.
Huhtamo shows us what fantastic results patient research can achieve.
One key segment, teased out through years of patient research, reveals an ancestor named Amos Thornton.
This could only have been achieved by thorough and patient research.
Yet patient research during the 20th century unearthed a number of facts.
To address a deficiency in clinical trial and research enrollment in gynecologic cancer studies, we launched a paper based patient research registry.
And now, seven years later, Lindsay is a speaker and workshop leader — and an inspirational example of the immense power of patient research.
See Appendix A: Guidelines for the Implementation of Corrective Action in Matters Involving Violations of Patient, Research Participant and other Medical Information Privacy or Security.
However, challenges for the future include where to set the limits for patient partnership, and the representativeness of the patient research partners in particular in terms of country of origin and culture.
