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Initially, 14 541 pregnant women (and their children) were recruited and over the 20 years of follow-up, the majority are still participating in questionnaires that are sent out at regular intervals and by attending study clinics (41).
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With respect to the first question, it can be concluded that the involvement takes the form of tripartite stakeholder representation both on the policy level (Steering Committees) and on the operational level (working groups participating in questionnaire development).
Offering choice of participation mode had benefit on participation rates compared to invitations to participate in questionnaires, but not when compared to invitations to participate in telephone interviews.
The milder PWS phenotype in younger individuals with UPD may allow families to be more involved in studies and to participate in questionnaires.
As far as we know, there is no evidence in the literature indicating if students or trainees are more likely to participate in questionnaires or interviews about their training.
In total, four medical officers, six assistant medical officers and 27 clinical officers participated in the questionnaire (Table 1).
First, the questionnaires were not completed by train passengers but rather online by participants derived from a database of people who had previously volunteered to participate in questionnaire studies.
This research employed cross-sectional mixed method because while households participated in questionnaire survey without any reservation, water vendors especially retail vendors were not feeling free to participate due to the nature of informal activities related to water vending, and majority are non-indigenes living without proper documentation.
CDB participated in questionnaire development.
All authors participated in questionnaire design.
Hong J participated in questionnaire administration and gave help in statistical analysis.
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