In four of the families, due to divorce, there was only one parent living with the children, which reduced the number of parents in the study to 26.
Moreover, it is difficult to retain parents in the study without providing them anything of a program.
From UNICEF side, the Head of protection in Sudan Mr Stephen Blight, underscored the importance of the role played by the children involved and their parents in the study, "the voices of children with disabilities and parents can be loudly heard in the study, and it is time for us - all of us with a duty and obligation for the fulfilment of children's rights - to listen and to learn".
In particular, many parents in the study stressed the importance of interpersonal skills and relationships with professionals in collaboration, in addition to establishing rapport with the family.
The majority of the parents in the study had at least 5 years of schooling.
However, the small number of single parents in the study may have reduced the valence of this measure.
More than 90% of children's parents in the study sample received 10 or more years of school education.
In March 2013, OHRP sent a letter to the University of Alabama, Birmingham (UAB), the study leader, imposing sanctions because informed consent documents did not adequately inform parents of the 1316 babies in the study of risks.
A total of 189 parents were asked to participate in the study, of whom 94 (49.7%) completed the questionnaires.
The sampling of parents in the study area was not exhaustive, and it was estimated that ca. 25 40% of the adults were sampled depending on the year (M. Piha, personal observation).
For example in the study of parents with ill children, some faithful parents found it helpful to express their anger toward God, but some parents moved away from their faith.
