Sentence examples for ownership of samples from inspiring English sources
Ethical issues in biobank are mainly focused on privacy, informed consent, ownership of samples and information, secondary use of biological specimens, benefit sharing, rules and governance (Cambon-Thomsen, 2004; Bledsoe, 2017).
Finally, the concept of ownership of samples is a fundamental question that needs to be explored further.
Important issues such as ownership of samples and data and capacity to analyse genomic data need to be addressed for such studies to be successful.
Both the initial sample collector and their institution may retain interests in or claims of ownership of samples, and collaborators may specify ownership in material transfer agreements for instance.
The nature of these ethical conundrums has been well documented, with research focused on issues such as privacy, informed consent, ownership of samples and information, secondary use of biological specimens, benefit sharing and governance [ 5- 8].
Further research needs to be conducted to explore the concept of ownership of samples and benefit sharing in different communities, both in South Africa and other resource constrained countries, to improve the consent process and to respect participant autonomy.
Hoping to expand their effort and make it more systematic, the researchers hooked up with drug giant Bristol-Myers Squibb, which agreed to spend several million dollars on the project over the next 3 to 5 years in exchange for ownership of the samples.
Issues around the ownership of those samples, and the consent given by participants around their use persist however.
Underlying many of these perspectives is the concept of ownership of biological samples.
Participants in our survey clearly expressed a sense of "ownership" of their samples, as is implied by the repeated references to "my blood".
However, when DNA analysis is included or is the sole means of participation, there is a shift to language focusing on the protection of the use of personal or sensitive information of the client and ownership of DNA samples, with little language about third parties.
