Based on broadly accepted scientific community standards, the key requirement for the third parties using genomic data is to contact the owners of unpublished data (i.e., the principal investigator and sequencing center) prior to undertaking their research, to advise them about their planned analyses".
Healthbank, MIDATA, and PEER explicitly frame users as owners of their data allowing them to decide what, how, and with whom to share data and empowering the individual data owner to make fine-grained decisions about data sharing through an IT interface.
Data access, analyses, and reporting are managed under the guidance of Novo Nordisk, the owners of the data collected.
Thirdly, for major funding requests, public funding agencies should strongly prefer applications that have both the plan and commitment to make the data publicly accessible within 2 or 3 years of acquisition (making the sponsors rather than the investigators the owners of the data).
The lead author accepts full responsibility and would like to apologize to the owners of the data (Dr Steve Shnyder, University of Bradford, UK), as well as the co-authors of this article, the Editors and readers.
"There is a lot of discussion about people becoming owners of their data, and 'personal data', and we call that personal because there's something to be respected, not traded.
The Tampa-based company with $2.5 million in funding from DouglasBay Capital sees itself as a more open, more honest form of social networking – one where its users are the owners of their data, and not the product being sold to advertisers.
Typical pet owners of these data are primarily regular people of humble means and set in their ways.
Service users were identified as the 'data subjects' and the ultimate owners of the data.
The aim was to tackle the complexity of understanding the consumption of PCC services through an intense interaction with the owners of the data.
